http://globalgenes.org Global Genes is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community
Genetic Connections
http://www.geneticalliance.org Biotrust, Genes in Life, Expecting Health
http://raregenomics.org Rare Genomic Institute is a community dedicated to helping rare disease patients find hope for a cure. They work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient […]